How to find out if you have eds, main types...
Advice will depend on which type of EDS you have and how it affects you: Physical therapy Joints with weak connective tissue are more likely to dislocate. Explain your condition to family members, friends and your employer.
Stitching EDS skin is sometimes described as "like sewing butter. Your GP may refer you to a joint specialist rheumatologist if you have problems with your joints and they suspect EDS.
Families with children suspected of being born with a connective tissue disorder should be educated to be aware of the potential risks of contact sports and how to preserve already unstable joints and general health. Braces can cause problems as they can damage the gyms and tongue while moving teeth quickly.
Blood pressure problems. You can also take these steps to prevent injuries and protect your joints: Sometimes the faulty gene is not inherited, but occurs in the person for the first time.
How to Diagnose Ehlers-Danlos Syndrome: Expert Clinical Advice
Ask others — grandparents, aunts, uncles, teachers — to do the same. Lifestyle and home remedies If you have Ehlers-Danlos syndrome, it's important to prevent injuries.
Health experts are pointing fingers at the pollution, smoking, and Western-style diets found in industrialized countries.
Allow your child to express his or her feelings about having Ehlers-Danlos syndrome, even if it means being angry at times. Current treatment options for EDS include: Joint hypermobility, for example, is relatively common, affecting around 1 in 30 people.
Flat feet. Your child's doctor or physical therapist also may have recommendations. Hiatial impotence of organic origin treatment. Fragile blood vessels resulting from cystic medial necrosis with tendency towards aneurysm even abdominal aortic aneurysm Soft, velvety-smooth skin which may be stretchy Trouble with male extra in ghent soft inner tissues.
Use sunscreen to protect the skin. Deformities of the spine, such as: Exercises to strengthen the muscles and stabilize joints are the primary treatment for Ehlers-Danlos syndrome.
Ehlers-Danlos syndrome - Diagnosis and treatment - Mayo Clinic
What types of symptoms are you experiencing? Myalgia muscle pain and arthralgia joint pain Nerve compression disorders carpal tunnel syndrome, acroparethesia, neuropathy Thoracic Outlet Syndrome Fluid effusions into the knees, ankles and elbows, primarily in Classical or Kyphoscoliosis types. Stronger medications are only prescribed for acute injuries. Some EDSers' hands collapse from the pressure of a simple handshake.
These tests include genetic tests, skin biopsy, and echocardiogram. Surgical and other procedures Surgery may be recommended to repair joints damaged by repeated dislocations. A prevailing misconception is that specific skin biopsy findings can confirm or exclude the specific diagnosis of EDS. Vascular skin conditions: Rest your jaw. Increase your knowledge.
Print Diagnosis Extremely loose joints, fragile or stretchy skin, and a family history of Ehlers-Danlos syndrome are often enough to make a diagnosis.
- Here are some suggestions that may help you cope:
- Do you have EDS?
Receiving a diagnosis of EDS, does however provide patients and their families with the ability to know what they are facing and to allow them to educate themselves and become proactive about the medical care they seek and receive. Treatment There is no cure for Ehlers-Danlos syndrome, but treatment can help you manage your symptoms and prevent further complications.
Children born with a connective tissue disorder will usually display warning signs before any serious problems begin to arise. So it's unlikely to be caused by EDS if you do not have any other symptoms. In addition, put adequate padding on your child before they ride a bike or are learning to walk.
The Beighton Score - Generalized Joint Hypermobility (Laxity)
Avoid certain musical instruments. Here are a few things you can do to safeguard yourself. Some of the rare, severe types can be life threatening. If there's a possibility you may have one of the rare male extra in ghent of EDS, your GP can refer you to your local genetics service for an assessment.
Has any blood relative died of a ruptured blood vessel or organ? Choose sports wisely. Over-the-counter pain relievers — such as acetaminophen Tylenol, others ibuprofen Advil, Motrin IB, others and naproxen sodium Aleve — are the mainstay of treatment. Juvenile periodontal disease.
EDS can affect people in different ways. Blood pressure. They can appear clumsy. Dry eyes Retinal detachment and ectopia. It also may help to talk to a counselor or clergy member.
Ehlers-Danlos Syndrome: Causes, Symptoms, and Diagnosis
Build a support system. This will show the doctor if there are any abnormalities present. What you can do Before your appointment, you may want to write a list of answers to the following questions: Maintain normalcy. Find a doctor who's experienced in the management of this disorder.
Getting medical advice
This involves removing a small sample of skin and checking it under a microscope. To protect your jaw joint, avoid chewing gum, hard rolls and ice. Here are some suggestions that may help you cope: Walking, swimming, tai chi, recreational biking, using an elliptical machine or a stationary bike are all good choices.
For example: To prevent a collapsed lung, avoid playing reeded wind or brass instruments. Many people with Ehlers-Danlos syndrome can benefit from seeing a psychologist or social worker.
Cultivate relationships with family and friends who are positive and caring. Adapting your activities It's important to be careful about activities that put a lot of strain on your joints or put you at risk of injury. Chronic degenerative joint disease Low muscle tone and muscle weakness Cervical neck instability occurs in some types, and some people may have trouble holding up their head.
Page last reviewed: The 2 main ways EDS is inherited are:
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